Sleep. For some of us, there is/was little. And, for all of us, it is/was hard. I haven’t forgotten the many days, weeks, months and (yes) years, without enough because I spent most nights holding my baby, often in the upright position.
We called Luca our “hold me baby” because most often, he refused to be put down. We would swaddle him tight and lay him horizontal for a short period of time…but it didn’t ever last. He simply could not stay asleep when he wasn’t in our arms and in a vertical position, wrapped up tight in a blanket. It was bizarre to me, that he wasn’t overwhelmed with being held so much. But, my little boy needed to be held A LOT, so we held him. And, though I didn’t understand why it was such a challenge, I wasn’t willing to overlook the fact that he needed something different than other babies. It made for very, very long nights and very groggy days.
by Marcia Hinds – Megan and Ryan’s Mom
It is not like I woke up one day and BAM my kid was better. Although Ryan is now an aerospace engineer, his recovery from autism was S-L-O-W. It took years. After two steps forward, he’d take one step back. Sometimes it was two steps forward, three steps back.
In the beginning of our autism nightmare, even I didn’t believe my son could get better or have any kind of life. Ryan had too many strange behaviors. Most times he acted like we weren’t there. I wanted some sign that he understood or heard anything we said. He gave us nothing. When I’d ask a doctor or teacher if kids with autism ever got better, their silence was my answer.